It's days like today when I am so thankful I don't work.
I woke up this morning, early, in pain. My whole body ached. I tried to go back to sleep for several hours, and was able to for the most part, but every time I woke up everything hurt. My entire back hurt, from my shoulders down to my lower back, and both my legs were in excruciating pain. My legs aching are usually a sign of a new cycle about to begin, but this time it has been much worse. And they've hurt like this, just not as bad, throughout this entire cycle. Always when I wake up.
So after trying to go back to sleep a few times, I realized it's not going to get better and lying in bed is only prolonging the agony. So I got out of bed and made it to the couch, where I quickly laid back down.
Praise God I don't have a job.
It always goes away after like half an hour. I feel much better now, just kind of out of it and dizzy when I stand up.
I'd love to know what exactly causes it. Like I said, the leg pain happens every month but not throughout the entire cycle like this and not this bad. Even last month, my first month on Tamoxifen, it wasn't this bad. I'm definitely going to tell my doctor at my next appointment.
Speaking of my doctor, I decided to call yesterday and request a peak+9 and peak+11 blood draw. I was talking with Lifehopes and she was surprised to hear I've never had that done, despite the fact that a month-long saliva test last spring showed that my progesterone dropped too quickly at the end of my luteal phase.
I called and he wasn't in, so I politely urged the nurse to see if another doctor or nurse practitioner could write it for me and fax it to my lab. She said she'd give it a try. About an hour later she called to say she'd done it. I was so excited...finally something seemed to work out easily! So I called the lab to see if they'd received the fax and they hadn't. I waited an hour. Still no fax. I asked the woman at the lab for the fax number there, and quickly realized the fax number on their website, the one I'd given my doctor's office, was wrong. I called back the office back and left a message (you always have to leave a message) with the correct number. I waited half an hour and called the lab. Still no fax. I waited another hour and called again. Still no fax.
The lab closed at four, and by this time it was after three. I was panicking. I even went into my "why can't anything be easy?" mode. I started to cry. Despite the fact that I really don't like to annoy people, I called the office back and left a second message. I waited ten minutes. Still no fax at the lab. Another ten minutes passed and it was 3:35. I called, and finally...it was there!
I had my peak+9 blood drawn, thanks be to God! And then, as I was leaving, I caught a glimpse of the fax. It said 15:01. So it looks like someone at the lab didn't see it for at least 30 minutes and my second message at my doctor's office was unnecessary. Now I really hope they're not too annoyed with me! I guess I need to remember that no one knows who I am and probably forgot about it a long time ago.
The bad news is that the order was only for peak+9, so I might have to go through everything again tomorrow. The nurse said she wanted my doctor to write the peak+11 when he came back, since it wasn't emergency to have it written yesterday. I'm hoping it all works out and they call me today or tomorrow saying they faxed it over.
So with all that going on yesterday, I didn't mention anything to the nurse about testing for the clotting disorder. I think what I'm going to do is wait for my blood test results, at least the ones from Saturday, and then set up an appointment. If I can get an appointment in the next couple of weeks, I'll wait and ask in person. But if it's like two months until I can get in, I'll ask over the phone.
Before I call, I need to give myself a pep talk. I need to tell myself that I can do this. They deal with pushy patients every day. It is not out of the ordinary for me to ask for a test. My doctor will not be offended. He is a great, prayerful person who wants to work with me on my treatment. He's the best doctor I've ever had and listens to all my questions and concerns. There is nothing to be afraid of.
Am I weird? Is it just second nature for everyone else to do what seems impossible to me? I just get so nervous, and for no apparent reason. And it has nothing to do with my doctor or his staff. It's just my hang up. I just hate the thought of being pushy or annoying to someone else. I hate the thought that, even for a second, my doctor might think that I think I know more than him.
Okay, now that you all think I'm crazy...
I'm going to go rest now. And maybe, just maybe, I'll even get my results back today from my peak+7 I had done on Saturday. If I do, I'll post them as soon as I get them!
*Update*
So my mom, who's a nurse, says leg pain can be due to a ton of things. She has often experienced leg pain associated with her cycle, she said, and also before she gets sick. She thinks the pain I described is nerve-related, rather than something to do with circulation. She said if it was circulatory, I'd feel some numbness, especially in my extremities, but I never do. My legs just ache, and it's mostly from my knees, up. She said it could be due to something moving or expanding at different times of my cycle, like my uterus, putting pressure on my nerves. I like this explanation because it's not anything seriously wrong with me.
Tuesday, February 24, 2009
Crazy pain and another blood draw
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I don't know how I am going to make it through lent. Do you think you could text me your post? I might have to get everyone to text me their post!
ReplyDeleteI think when you call to get the P9 & P11 prescription you should get one for the blood clotting disorder. It is really nothing that you have to sit down and talk to your Dr. about. Seriously, you can do it when you go in for P9&P11. You are NOT being pushy. Remember we have to be our own advocate. You just have to be persistant (like you were yesterday) and that is not being pushy. ;)
They get caught up in being pulled in different directions so staying on them to get things done is not being pushy. It is not blending in and being forgotten about. That's all. Squeaky wheel gets the oil.
Don't forget you have a ton of signs pointing you to this test. What can it hurt???
AYWH-This is God-Get the test NOW! ;)
Hey there! I just wanted to say how proud I am of you for calling and staying on them yesterday!!!
ReplyDeleteNo, you are not crazy. I am like you in basically every other circumstance in life, even in pro-life lobbying (not always a good thing to be afraid to "bother" someone. We're always a bother!!!)
Somehow, though, when it comes to my IF, I know the situation is desperate, and I have to keep this ball rolling b/c no one else will do it for me.
I hope this helps you to feel better about it all, but P really appreciates when patients communicate with him about what they want and need, because Sew is right -- often times these Drs. can get pulled in a million and one different directions.
Squeaky wheel DOES get the grease. That is just how things go in busy offices.
And you are such a kind, polite person, K. There is no way this Dr.'s office is going to think badly of you.
Killing them with kindness is a GREAT strategy! I have done that many times myself with the nurses at the clinic I am working with. I know I am the "Difficult" patient, but at least they can't say I'm a rude one!
I am not embarrassed about the fact that I need their help. It's their job. However, I am never rude. Sometimes I apologize for how I am making their day harder, and thank them over and over again for how wonderful they are being.
Anything to get them to help us, right??!!!!
K-
ReplyDeleteI totally understand your whole phone call thing. I get nervous any time I feel like I'm putting someone out. I feel guilty and worried! I wonder why?! I need to realize that I'm not ALWAYS inconveniencing someone!
Good for you, though.
I hope you're doing well. I'll be praying your Lenten journey.
Oh, pardon me... I have to leave the room. My roomate has the tv on and I just got a shot of Nancy Pelosi. She makes my blood boil. Ugh.
I know what you mean about making those calls to the doctor. That's one of the main reasons it took me so long to get my tubal procedure, i didn't want to bug the "busy" doc. So i just left messages and would wait a week before calling back if i hadn't heard anything.
ReplyDeleteMust be so awesome to have a nurse as a mom!
K, I wanted to respond to your comment about abdominal pain a few days ago. I had the worst left sided abdominal pain 2 cylces before I conceived. I thought I was developing another large endometrioma...which I actually do have based on my ultrasound. However, perhaps some pain is related to the body trying to function normally!
ReplyDeleteI don't know how to explain your leg pain, but your mom's explanation sounds possible. Do you have a history of adhesions? That could possibly be the culprit as well.
Don't worry about being persistent with your doctor's office. I am a nurse at a clinic, and as long as the patient is polite and not rude, I don't mind when they are persistent. To tell you the truth, things usually get done faster for them (as long as they aren't obnoxious.)
Sew is absolutely right. If there is anything I have learned from being in healthcare, it's that you have to be your own advocate! I am still pushy when it comes to my lab tests from PPVI...even though I have to explain over and over why I have lab orders from a doctor in Omaha! Stay strong!
I wish I had some answers about the leg pain, but what your mom was telling you sounds promising (I mean, in terms of figuring out what it is related to).
ReplyDeleteAs for the prog work, I'm so glad you are getting that done! I didn't realize you hadn't ever done that (or at least, not in a while), either, but that is so important! And one of the things NaPro does that you don't usually see secular Drs do. I've had clients come from secular Drs, and tell me their 7dpo b/w was "fine", and yet in their charting they have pre-menstrual spotting every month at P+9 or 10. But their Drs just told them everything was normal. Grrr.
And for the blood clotting b/w, I do know what you mean about not wanting to be annoying. I always think I overstep my bounds when I call to request something from my Dr/slash/BOSS. I had a wake-up call the other day, though, when I was setting up an appt with the secretary, and she said to me, "You can't let yourself and your treatment go by the wayside now that you work here!" I was like, whoa, I was under the impression I was asking for TOO much for myself BECAUSE I work here!
Anyway, I do think you should push for it. All I had to do was ask, and lo and behold, I received :) I'm sure your Drs office has patients WAAAAY more obnoxious than you, so don't worry about it!
I say be as "obnoxious" as you want. You're paying them dang it. And people are so nonchalent about so much, they take FOREVER to call back. Drives me nuts. So bug away!! ;) I'm glad you're getting these tests...totally awesome.
ReplyDeleteYou may want to research "Sciatic Endometriosis" as the cause of your leg pain. This can cause it and can also cause stomach upset/IBS symptoms. I'm still praying you get some answers and have some peace. God bless.
ReplyDeletedon't feel bad about being assertive with your doctor's office. just think that you're just being an advocate for your body and sometimes it takes A LOT of phone calls!
ReplyDeletei'm certain that you were courteous and polite, something that most people that repeatedly call their doctor's offices aren't.