Thursday, March 8, 2012

Strangely familiar

I so thought it'd be easier this time around...

I started taking compounded progesterone a couple days ago. I took half a dose at night (50 mg) simply because I didn't know how to tell if it was peak-plus-one any earlier than bedtime (heck, I don't usually know what was peak or peak-plus-whatever until I look back at my chart days later!), and I thought I had to take the two pills at different times of the day (I've since learned I can take them together).

I woke up at 5 a.m. with terrible nausea, thought I had the stomach bug. I went back to sleep and woke back up around 8, still sick. By 9, it was gone.

I figured it was due to the progesterone - causing me to feel something akin to morning sickness - so I took just half the dose again that night. That was yesterday. This morning I woke up with no nausea, but terrible cramping. It lasted a little longer, going away around one this afternoon. But I had pain on my right side (my ovary?) that lasted all day.

I'm taking it orally and a nurse told me this afternoon to keep taking it (the FULL dose) until my doctor is back in the office next week.

The reason I'm on compounded progesterone in the first place is because I can't handle prometrium. I get bad headaches on it. But I'm also suspicious that it caused weight gain and mood swings.

I'm hoping that my body is just getting used to this progesterone, and that the nausea and cramping will go away soon. But the nurse said it could last more than a week. That freaks me out because I can't just sit around with nausea and cramping when I have two babies to take care of.

So I am left with the decision to keep taking something that makes me ill, in hopes that it will go away two weeks from now...or give up on a treatment that I likely will need if I ever hope to conceive again.

It's not a hard decision - I will choose feeling well and caring for my babies because I can't take care of them when I'm sick, even if it's just a week - but it doesn't come without sadness.

I'm not making any decisions just yet. I'll give it another day or two. But a week or more? I just can't. (And, on a side note, I have to travel alone, just me and the kids, eight hours in the car this weekend. Not possible with nausea.)

So I'm kind of sad tonight, and getting down about not having properly functioning reproductive organs. My body can't even handle progesterone. It can't get pregnant (except for one glorious time!) and it can't birth a baby.

And I'm sad thinking about how I might need another surgery. The pain on my right side could be another endometrioma. I'll wait until it gets worse, then ask for an ultrasound. That's what happened two years ago when I needed emergency surgery.

But now, surgery with two babies at home? That terrifies me. Terrifies me. How would it even be possible? I don't have any family nearby. The surgeon is two hours away. I'd likely have to have a laparotomy with a six-week recovery time because that's what I've had every other time I've had surgery. I can't even think about it because it's too much to wrap my mind around.

And in this scenario, surgery wouldn't be optional, like it wasn't optional last time. As far as I know, you can't take medication to shrink endometriomas like you sometimes can with regular cysts. You can't just wait it out if it's causing you pain.

I'm getting ahead of myself. I should stress that this is just me worrying about the possibility of needing surgery. No one has told me I need it. It's just worst-case-scenario. I'm still hoping the pain could be from something else. Can progesterone cause pain in the ovary you just ovulated from?

It's just that I had hoped I was healed. We talked about it as early as when I got my positive test. I was thinking about the future even then. I told myself how there aren't a ton of blogs about secondary infertility a year after conquering primary infertility...That it seemed like a lot of women with secondary infertility didn't have difficulty the first time...That it wouldn't happen to me. I'd get pregnant right away and not have to go through more surgeries and medications (especially since I wasn't taking anything when I conceived before, so there's nothing to try again).

But it's all strangely familiar now. The worries, the fear, the treatments, the medications, the side effects.

It's easier going through this with babies, for sure. But it's different, because I don't have the time and energy to devote to infertility anymore. As we all know, it's like a full-time job. Now it takes me weeks to call the doctor's office with a question.

I don't know if I have it in me this time around, and that scares me. I want it badly. I want to grow our family, but there just aren't enough hours in the day.

I'm going to take a deep breath and calm down. Hopefully I'll wake up tomorrow morning feeling fine. And if I don't, it's not the end of the world. I'll stop the progesterone if I have to. I had low progesterone when I got pregnant with Luke and wasn't taking anything then either.

I'm starting to think that our next baby (thinking positive here!) will have to truly be born out of prayer. If I get pregnant again, or if we adopt again, it will have to be with God moving mountains. And MAJOR mountains, because I just can't give the same effort I did before. And we can't afford to adopt again.

So I'm leaving it ALL up to Him.

With God all things are possible. I should know that as well as anyone, and it will be what I repeat to myself in my moments of doubt. With God all things are possible.

16 comments:

  1. Just a thought, but if the progesterone is not working for you, why don't you try Hcg? I think that is what we are going to do over here ... it supports both estradiol and progesterone, both of which I tested low in. I realize its an injection, but not a big deal. I can handle an injection any day of the week compared to nausea.

    I know what you mean when you say you don't have it in you. That is my thought exactly. I don't have what it takes to try to get pregnant. Heck, I can barely muster up the energy it takes to have the sex! ha ha! Did I just write that?? Yes I did! Ha ha! No shame over here.

    Anyways, try to take it all one step at a time. It can all spiral out of control so quickly, and before we know it, we're not able to think rationally! (not saying this is where you are at, just saying this is what happens to me!)

    ReplyDelete
    Replies
    1. No, you are right ;) I definitely have an hour here or there where I don't think rationally. I think I'm coming out of it right now.. haha.

      To be honest, I had completely forgotten that HCG was an option! It's what I was supposed to try next. If progesterone doesn't work, maybe I could move onto that sooner.

      Delete
    2. LOL at LifeHopes!
      Ditto on the NO ENERGY with 2 small children...to do anything.
      I use a natural progesterone cream 2 times daily. I just started this again this month, as I had given up on charting a year ago and stopped using the progesterone cream at that time...but now I guess when I am post peak. It has nothing to do with fertility for me...just helps with PMS.

      Delete
  2. LOL at LH.

    I second her opinion...why not try hcg? it's.so.great. it shouldn't give you those side effects and might even give you energy! Another thought, have you tried compounded bio identical progesterone? Is that what you are taking? Have you considered calling the pharmacy and asking if they have that reaction a lot? Maybe it's the fillers? Delivery method could be changed? Just throwing out thoughts. :)

    It's NOT over. I know it. Don't give up.

    ReplyDelete
    Replies
    1. Does hcg have any side effects? Because I'm bound to get them!! ;)

      All I know is that it's compounded progesterone. That's all it says on the label. And I never, ever think to call the pharmacy. Maybe I will! Thanks!

      Delete
    2. Call the pharmacist, dang-it!! :)

      Ask if you can take it vaginally.

      ...and now I'm queasy again ;)

      Delete
  3. I would quit the progesterone too and get on hcg!!

    ReplyDelete
  4. Arent you still nursing too??? Some women absolutely can not get pregnant nursing.

    ReplyDelete
  5. There are at least 5 kinds of Progesterone that I know about. There may be more. The nurses at one of my docs said to me some varieties work better for some women than others.

    Have you tried them?

    Maybe Crinone will work better for you?
    Or the P in Oil?
    Or the natural progesterone?
    You said you have tried the oral kind as well?

    And, you are taking it before bed ONLY or with meals?

    ReplyDelete
  6. I so understand how you feel about not having time for secondary infertility. That's exactly where I am right now. And, I've come to the same conclusion, about this being in God's hands. I pray that he will produce an egg and release it, open my tubes, clear my uterus and make the DHs little swimmers strong, ect. I pray the whole conception process until implantation. I do that because at this point an ultrasound series is out of the question as well as a complicated med routine. You are right- He has a plan and it is beautiful! HcG sounds intriguing. Lifting you up in prayer today.

    ReplyDelete
  7. My NaPro doctor just gave me a compounded progesterone prescription. (Apparently, my levels are far too low, post-peak). But he gave me compounded suppositories, taken peak+3 onward. (Alternately, he offered the 3-injection-per-cycle batch that I used to take, when I wasn't cycling at all.)

    Have you tried it in those forms?? (I didn't even know it was available orally - my doctor specifically did NOT give me that option.)

    ReplyDelete
  8. If I were actively seeking IF-tx, I wouldn't fool around with the Prometrium...make a beeline for the HCG. Way more effective though it is pricey and is a PITA...literally.

    A simpler (though not as aggressive) approach might be bio-identical natural progesterone cream. I get mine cheap and OTC (through Amazon actually--Emerita Pro-Gest) to manage PMS, moodiness, weight control, acne, etc. The results over the past few months have been amazing and I've had zero side effects--way easier than shots too. (Google Dr. John Lee--did a lot of research on hormone balance, but especially natural progesterone. There are many benefits to the cream over the pill.)

    ReplyDelete
    Replies
    1. That is the exact one that I use...by Dr John Lee

      Delete
  9. All I can say is that I'm so sorry this is so hard. I don't know why it has to be this way. I'm thinking of you...

    ReplyDelete
  10. Hi! Praying for you-I can feel your thoughts spiraling as I read your post! On thing at a time, and remember to trust in God again!

    Also-I took compounded progesterone, as a vaginal suppository (as other commenters mention). It's messy and I had to do it for the first 12 weeks of pregnancy but it's the ONLY way I can handle being on progesterone without feeling like I'm going crazy.

    I'll also pray that any progesterone side effects go away quickly for you-I can't imagine feeling nauseous and caring for two babies!

    Take care, lots of prayers!

    ReplyDelete
  11. I also second (or third or fourth?) the recommendation for natural progesterone cream. I buy mine over the counter at the compounding pharmacy - it's much easier for the body to absorb through fat than through the digestive system. It doesn't have all the nasty side effects that oral progesterone does - it makes me feel fantastic, in fact! And it's cheap :).

    ReplyDelete